March 22, 2018

Charlie Gard's parents in new fight to take baby home

26 July 2017, 01:09 | Yvette Williams

Parents prepare to return to return to court over sick baby

The Truth About The Hospital In The Charlie Gard Case

The parents of terminally ill infant Charlie Gard said Monday that they would end the legal battle for their son's experimental therapy in the US, choosing to avoid what could have been a further legal setback in the British courts.

Minutes earlier, a lawyer for the couple accused Great Ormond Street Hospital of placing obstacles in the way of Charlie being taken home for his final moments.

"Charlie's parents Chris Gard and Connie Yates announced on Monday they were giving up their five-month legal battle for their son to receive the nucleoside treatment from Hirano in the USA, for which they raised over 1.3 million pounds in donations".

The couple told the court they want to take Charlie home, and indicated that Great Ormond Street Hospital (GOSH) doctors thought such a move would be problematic. Hirano said there was as high as a 10 percent chance that the child's condition could be improved with treatment, a view not shared by Charlie's United Kingdom doctors who argued that travel to the USA would cause the child undue suffering.

Grant Armstrong says it is "worthy of a Greek tragedy" that Charlie's parents must withdraw their appeal, just as they were about to present new evidence to a court.

Charlie has received support from all over the world, including offers to help from high-profile figures like the Pope and U.S. President Donald Trump.

British and European courts had sided with English hospital officials who sought to bar Charlie Gard's parents from seeking treatment overseas.

Charlie's parents want him to be with them and ventilated at home for several days before receiving palliative care.

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"It must be provided in a specialist setting by specialists".

The baby has a rare genetic condition and will die once his life support is removed.

But it was announced on July 24 that Charlie's parents were ending their legal fight and had withdrawn their application from the High Court.

But the judge said Great Ormond Street Hospital had indicated that there were practical difficulties - including that the ventilator would not fit through the property's door.

Mr Justice Francis, sitting at London's High Court, said the dispute cried out for a settlement.

However, they said Charlie's parents had not wished to use the services of a mediator and had proposed no clear plan.

Bambino Gesu director Mariella Enoc shared that view, saying at a news conference Tuesday that experimental therapy "could have been an opportunity" to help Charlie, but it was now too late. "The key obstacle and one which the hospital can not see a way around is the reality of invasive ventilation that Charlie requires".

Charlie's doctors are responding to the facts of his condition, not the demands of the NHS, as the court case amply demonstrated. The hospital had suggested a hospice option.

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